 Its so important to learn the best way you can handle the cards you have been dealt... Educating yourself Understanding what is going on with your body is so important. This can be difficult if you don't have a diagnosis, and many people don't for years. Once you have a diagnosis, it is often advised that you don't "google" your symptoms, but finding forums and support groups is really helpful and can make you feel reassured. YouTube is a great source of information. You won’t find the information that you want right away but in time you will build up knowledge from different sources that will be able to help you better understand whats going on and how you can get help. Join Support Groups The hardest feeling with having a chronic illness is loneliness, you are not alone. Fortunately, we live in a world where social media and connections and support is at our fingertips. The downside to this (and one of the main reasons I created this Positive support group) is that some support groups can radiate negativity and really put you down and un-motivate you. Instagram is a brilliant source of support; you can find plenty of individuals on there who express how they are smashing life with a chronic illness and what works best for them. Accepting that it isn't going to go away Its chronic....it’s not going to disappear. So, how do you want to live your life? Staying positive is so hard at times but we can be content. Accepting that its beyond your control to cure yourself but not to change your perspective is vital. You were served this chronically ill life, and unless you accept it and conquer your fear of the unknown...it will most likely bring you down. Life is too short and there’s so much to enjoy. Try everything but not at the same time Take your time to discover what works best for you. You won’t discover answers straight away, you won’t find the right support straight away and the people surrounding you will struggle massively to understand you at first. That is how it is but that doesn't mean that time won’t change those things. It’s important to try different remedies and coping mechanisms for at least a week apart so that you can get a true representation of what works for you. Plan your life The spoon theory can assist you. Learn that it’s okay to not follow through with the plan that you had. Learn that you could plan for two situations. You might wake up and it is a good day, or you could wake up and it could be a flare up. Accept that and have something in mind for both situations. You are not alone! Take the days off work where you need to, rest up, look after yourself and never ever let anyone tell you that you are being too dramatic or that its all in your head because they don't really know and don't understand. Don't forget that to the outside world, what you are battling is invisible. A bit like in Harry Potter when only people who have seen death can see the winged horses, in our life only people who have experienced a chronic illness will be able to understand chronic illness. Be proud of yourself for waking up and conquering each day. Connect with people online, send messages, letters, posts of inspiration and lift each other up! You've got this.
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